Understanding Successes and Challenges in Caregiver Health-Promoting Self-Care

Caregiver Picture


What is the Purpose of this Study?

Caregivers of children with developmental disabilities can experience unique demands on their lives. We are interested in understanding the successes and challenges that caregivers have in self-care that promotes personal health and well-being.

We seek to interview caregivers of children with developmental disabilities (ages birth – 21 years) as an exploratory measure to learn about their experiences as a caregiver, and particularly about their personal self-care behaviors. The information gathered from the interviews will be used to inform development of supports to assist caregivers with health-promoting self-care behaviors.

What is a Developmental Disability?

A developmental disability is a disability that persists throughout a person's life and results in physical, cognitive/intellectual, and/or social/emotional deficits that interfere with an individual's daily functioning. Some examples of developmental disabilities are:

  • Autism Spectrum Disorder
  • Intellectual Developmental Disorder
  • Cerebral Palsy
  • Attention Deficit/Hyperactivity Disorder
  • Learning Disabilities


How Can You Participate?

At this time, we have received the responses that were needed for this first pilot and have closed the participation form. Thank you to everyone who took the time to complete the participation form and participate in this study. Please refer back to this website for updates about the study results.